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favorite this post Ehlers-Danlos? (Lane county) hide this posting unhide

1 in 5,000... Must be less than 50 of us in the Eugene-Springfield area, maybe 75 total in all of Lane County.

Once thought to be just double/ flexible joints, medical science now knows this is a serious systemic genetic disease.

I would really love to start a support group here so we don't all have to drive to Portland for meetings.
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